Wow, what have we been up to?
November is a busy month for you, right? It has been a crazy month for us, too. As you know, we came back to Kansas to get some medical things taken care of, so we have literally been in various doctors offices nearly every day this month. The verdicts?
Corbin's eye looks fabulous and he's set to have his follow-up surgery in May of 2014. We will have one more visit with the surgeon to make sure everything is looking good. We are so thankful for this report, because this was a really risky surgery for such a little guy. But leave it to this 1 in a billion kid to out-perform everyone's expectations. He's goin' big or goin' home-always!
Violet has her diagnosis and is being prescribed play therapy a few hours per week. The psychologist says she is absolutely amazing and has had good parenting. We recognize this is a HUGE blessing, because we are far from perfect parents. We must give credit to the trauma training we've had (Particularly "The Connected Child/Created to Connect by Dr Karyn Purvis) and Violet herself, as she's a resilient, awesome little person and of course, God for giving us a sense about her and leading us to gentler ways to parent her.
GraceAnne is, well...GraceAnne didn't have any doctor appointments at all. I guarantee you she's thrilled about this fact as GraceAnne is even more anti-doctor than her dad or I ever considered being. I hope we are donig an okay job helping her see what help some of them have been to us.
And then there's me...I've had some tummy troubles over the last couple of months and needed to get it checked out. I've had blood tests and they show elevated lipase and low potassium (even after supplementation). I've spoken to a GI and Wednesday they will perform an endoscopy. I've had to go on a full gluten binge diet the last 2 weeks and I've been both excited and sad about it. On one hand, I feel like crap, but on the other, I have so missed some of my favorite foods and just the ability to eat what I want again has been a huge load off my mind and good for my mental health (though feeling gross does not help my mental health, so maybe it's just a scratch game? haha) I am very nervous about the scope and trying hard not to think about it. It will be good to have answers, though if the test comes back negative for celiac, I'm not sure what to do from here. I do know one thing, though, I am SO in need of a good detox/juice cleanse!
In other good news: 15 sleeps until Disney!!
AND...
Because we have to be somewhat settled down for Violet's therapy, I found a Montessori school for the girls to enjoy for the rest of this school year. They were approved for a scholarship and are both super stoked to start after the new year. I toured the school last week and I have to say I think it will be a perfect place for us to recover a bit from the blow of Violet's diagnosis and Allan's deployment. We are still hoping to travel here and there on weekends/breaks, but I do feel like we're dropping anchor. As per the norm, we will ride this next wave and see what's on the horizon!
Hope you all have a wonderful Thanksgiving holiday! Are you having family/friends over? Will you be the guest? What is your favorite Thanksgiving dish? (The kids are particularly looking forward to a pumpkin pie I picked up at Whole Foods with a gluten-free crust.)
Showing posts with label roadschool. Show all posts
Showing posts with label roadschool. Show all posts
11.25.2013
11.05.2013
Diagnosis and Down Time
Today we had Violet's autism assessment, which was one of the big reasons for us coming back to Kansas. We left early to make sure we could find the clinic. We needed to score some lunch and check our mail, too. I didn't exactly know where we were, so I was very pleasantly surprised when we made 2 turns and found the mail facility and Trader Joe's.
Next it was off to the assessment. The determination? PPD-NOS (High Functioning Autism) with Sensory Integration issues. What does this mean? Really, nothing new. Violet has always been Violet and she always will be. The only thing that changes is our ability to get the training we need to help her grow into exactly who she was made to be.
So her diagnosis is good news. But the appointment flat wore me out. 3.5 hours of talking and watching and thinking and prodding will fry a brain. Thankfully the kids had a blast, they didn't even want to leave. Violet really attached herself to the doctor...literally...I had to peel her off the doctor to leave.
I had dinner to consider, but couldn't bring myself to actually use the mush between my ears, so we stopped at Chick-fil-A so the kids could play while I had some coffee and sent an email to daddy about our girl.
I initially wanted to go to Target afterwards, but it was rainy and already getting dark so we came home instead. The kids have been begging to see The Croods again, so tonight is a family movie night complete with popcorn (stove-popped in coconut oil with lots of butter, Real Salt and nutritional yeast) and a Zevia soda, which was waiting for us as an awesome surprise at the mailbox! (Keep an eye out, because they are going to give 5 of my readers a free 6-pack of their own 0-calorie, smarter soda!)
I'm really grateful for this much needed family night and a few days with no doctor appointments or bills or anything except settling in, getting some school done and learning what it really looks like to do life without Allan. There will probably be some tears, but hopefully there will be a lot of love, too.
Labels:
Autism,
deployment,
PPD-NOS,
roadschool,
Zevia zero calorie soda
11.04.2013
Welcome Home...Again
So it turns out that when your husband takes his carload of crap and then you bring your carload of crap and one of you deploys...2 carloads of crap become one. Thankfully we had transported a lot of what we needed to store when we came to Kansas for Corbin's appointment with the surgeon in August, but that still left a lot of hubby's things that needed to be stored. We were cram-packed into this truck this trip. The last 2 days at the lakehouse, I resigned myself to having no semblance of order whatsoever and took on the mindset of, "GET IT IN THERE."**Side note**Thanks to this mentality, when I let the 9-year-old be responsible to pack clothes, she forgot the pants...so we all looked like hobos in dirty pants the entire trip because I couldn't find the rest of our clothes. Rockin' job, eh?
Our first stop was only an hour south of the lakehouse because it was Halloween and we wanted to Trick-or-Treat, so we used the opportunity to visit with a friend one last time. The kids had a blast and I realized we need to do more "training" for Disney than I had previously expected. I was WORN OUT after about 45 minutes in that busy mall.
The next day was a power-through day and landed us in Ohio. That day was very hard emotionally, because as we were driving west toward where hubby was doing pre-deployment training, he was gearing up and eventually flying east. We may or may not have had a hard time on the phone that day because of my generally crappy attitude. He texted me sweetness before he got on a plane, though, and let me know we would probably not be able to have any contact for the next 2-4 days. That day ended up okay because I called our hotel chain and explained the troubles we have with gluten, so they helped me find us a different hotel that would have better choices for us.
The next day was another power-through and we made it to St Louis, where we had the most terrible food experiences of the week. We didn't even get to eat until 9:30pm (not for lack of trying!) Gluten-free living on the road has got to get easier. I couldn't find a Super Target to save my life, even with my app! But, literally the ENTIRE DAY we had skies like this:
Yesterday was our last car day. We found a local Trader Joes and braved city driving to get some breakfast/lunch and snacks for the day. It was very much worth the hassle. We only had 5.5 hours of driving to do, and everyone was actually in really good spirits. We stopped at the mail facility to pick up our mail, where I found a bunch of bills I wasn't expecting, but we also made it to Whole Foods to pick up the fixins for a simple homemade dinner. I managed to unload most of the car without too many tears and fix dinner and we all settled in as best we could.
So for those of you wondering, it's actually so simple it's stupid...I brown butter and garlic in a pan while I bring chicken broth (or water) to a boil for noodles. When it boils, add a bag of frozen or some fresh broccoli florets. Let it come back to a boil and add the noodles (we found some brown rice & quinoa noodles at TJ's) cooking until al dente. Drain the broth (or keep it, it's up to you) and add the browned butter. We add some chicken, too. It's pretty fast and easy and we all like it a lot with some salt and pepper.
The day ended on a good note with this to "come home" to.
We have lived in some of the very coolest places ever!
Today has been mixed. This morning was awesome, as a couple of friends let us use their washer and dryer and even left me coffee (they *do* love me!)
This afternoon...not so much. I had to go to the doctor for some physical issues I've been having lately and they *always* make the patients do the quick psych run down. I *always* end up getting "sheeted" and having to answer a million questions about my feelings and thoughts and then I *always* have to be asked if I'm going to hurt myself (for the record, NO...I will not) and get referred to a specialist. I would love to talk to a therapist, really...but the last time I tried the military psych he told me I was a rockstar and most people would have been drowning, so keep up the good work and let him know if I changed my mind about taking meds. REALLY!? So no, I don't feel so inclined to head back.
The real problem with the questionnaire is that it makes me realize how hard things ARE. I mean, yeah, I know, I do live this life afterall, but to just lay it all out there and to score it is a big slap in the face. I deal because I have to and I'm good at it by anyone's account. I know how to handle pressure. But to see it all on a piece of paper and face the reality of what the doctor is thinking when she looks at it is difficult.
By the time we finally got out of there and headed down for the labs she ordered (oh yeah...I was there for physical problems! I had forgotten) the kids were just OVER it. I was mad at them at the time, but I can't really blame them. This is one of the hardest times of their lives, they just spent 3 days in a car and now they get to sit in doctors offices for hours? Not so fun. So I wasn't able to get the x-ray she ordered, but I did manage to get the blood drawn.
On the way home I may have had a meltdown and it may have been pretty ugly. I have since made up with the kids and we had a really great evening together full of lots of bonding, but something has to give. I feel as if I'm under a tremendous pressure and I miss my husband desperately. I don't "fit" anywhere because he is deployed, yet he is a government contractor/retired military. I want community, but I don't want to be social. Everything seems very *hard* right now.
Per the suggestion of a good friend who talked me down off the "I'm the worst mother on earth" ledge, I am going to make a list of what I got done today. And tomorrow we will take it one task at a time (please pray, Violet has her autism assessment tomorrow...it's going to be a very long, hard day) and if the kids eat take-out and go to bed without washed hair, as long as there were no mommy melt-downs, I will consider it a success.
Today was a success because:
- I got to cuddle Corbin before the girls woke up
- I managed to make breakfast (eggs) and coffee and get everyone dressed and ready to do laundry with minimal fussing
- We did enough laundry to get us through the next few days
- We made it to the doctor's office on time
- I was able to get my blood drawn and UA done
- I calmed down enough to make it home and called a friend
- We went for a walk and talked to the property manager and saw lots of animals
- We dropped daddy's stuff off at storage, repacked the entire thing and got out sheets because we found out today linens are not provided
- I actually saved the sheets (okay, so this happened months ago, but I was pretty stoked! I was not looking forward to buying more)
- We ate a hot, organic dinner at home(pre-made tamales from Whole Foods, OH.MY.YUM!)
- The kids all got bathed and lotioned
- We made the beds
- We read a story
- We talked nicely to each other all morning and all evening
- The kids went to bed happy and feeling loved
- I wrote a blog post
So this turned into something I didn't intend for it to be, but there it is. I hope you're having a good night and that you found some encouragement today.
10.09.2013
Moms Meet-WOW Summit 2013
A little while back, Hail Merry posted on their facebook page that they had been accepted as a vendor into the Moms Meet program. I went and signed up without knowing much, because of my relationship with the ladies at HM. To over-simplify the group, they are a product testing site that hinges on it's "ambassadors" making connections with other moms. Over the last few weeks I've been poking around the site, applying for product testing opportunities. I liked the idea of it (I've participated in lots of these types of things over the years and enjoy it) but I wasn't completely sure what was behind the Moms Meet name.
In my campaign signing frenzy, I won a trip to the 1st annual WOW Summit, hosted by Moms Meet in Philadelphia, PA. Allan and I decided to make it a fun little family trip. When we did our October budget, I wasn't sure we could pull it all off, but the Moms Meet people went above and beyond to make sure we could get there.
We started the 5.5 hour drive from our current residence in Northern New York on Sunday morning and got to the Sheraton in Philly in time to be the first ones at registration. That worked out well because it gave us time to settle the brood in before I went down to the cocktail reception. At check-in I got my name tag and bag for collecting goodies.
The Sheraton in downtown Philadelphia is gorgeous. The kids were quite impressed with the place, (as were we!) We were, however very surprised by the valet charge. Not that we would expect a hotel not to charge for valet service, but there are literally NO other overnight options for parking near the hotel. So if you ever go, know that you will pay for parking and if you have a "big" vehicle (like a '96 Chevy Suburban, haha) you will pay extra. As the kids and I travel this coming year, we will be sure to ask that before we reserve any rooms from now on.
At 6:30 I headed down to check out the cocktail reception in the hotel's restaurant. They had a mashed potato bar set up for us Mom Ambassadors and some Applegate finger foods (all-natural deli meats and cheeses). I wasn't sure what was gluten-free, so I stuck to the potatoes, which were super-tasty.
Zevia was a big sponsor for the Summit, so the cocktail party featured some of their "Zero Calorie Soda" in mixed drinks. Not being a big drinker, I ordered the non-alcoholic Pinapple Upside Down Cake drink (cream soda and pineapple juice). It was pretty good! I have seen Zevia at our local Target before and have wanted to try it for a while, but to be honest, when something says "Zero Calorie" I tend to steer clear. I learned a lot more about the company and product at the Summit, and I must say I am impressed. I am hoping to talk to them some more about possibly doing a review soon, so keep your eye out.
In my campaign signing frenzy, I won a trip to the 1st annual WOW Summit, hosted by Moms Meet in Philadelphia, PA. Allan and I decided to make it a fun little family trip. When we did our October budget, I wasn't sure we could pull it all off, but the Moms Meet people went above and beyond to make sure we could get there.
We started the 5.5 hour drive from our current residence in Northern New York on Sunday morning and got to the Sheraton in Philly in time to be the first ones at registration. That worked out well because it gave us time to settle the brood in before I went down to the cocktail reception. At check-in I got my name tag and bag for collecting goodies.
Our room had a great view of the bridge to New Jersey and some of the boats on the river. At 4 stories, there aren't many other places taller in the area, so we got a great panoramic view.
At 6:30 I headed down to check out the cocktail reception in the hotel's restaurant. They had a mashed potato bar set up for us Mom Ambassadors and some Applegate finger foods (all-natural deli meats and cheeses). I wasn't sure what was gluten-free, so I stuck to the potatoes, which were super-tasty.
I didn't know anyone and everyone seemed to be sticking to those they knew that evening, so I went back to my room early and wondered if I had made the right choice in coming. Allan and I took the kids out for a drive around downtown Philadelphia (such an amazing place full of so much history!) and crossed the "big blue bridge" at their insistence.
It's free to cross into New Jersey, but you have to pay 5.00 to get back. I think it's because New Jersey's gas is 30 cents cheaper than Pennsylvania. haha It was well worth it, though, we really enjoyed the drive and the view. (and no, it doesn't seem my children ever get sick of driving around...they were made for this roadschooling stuff)
The next morning I was up bright and early and got to enjoy a breakfast with the fam before the Summit started. Despite my reservations the night before, I was quickly proven wrong. The WOW Summit had a lot of really fun speakers and as the day went on, I was more and more excited to be a part of this group of people. Maxine Wolf is the CEO of MayMedia and kiwi, who is the umbrella over Moms Meet. After hearing her speak and tell about her vision for the group, I feel the same way about being a Mom Ambassador as I do about being affiliated with Hail Merry. Where there is a group of women focused on green-parenting without guilt I want to be! Maxine is so laid back and kind and smart, as are the women she has surrounded herself with while building these different organizations, groups, whatever you'd like to call them. I wish I had gotten a picture of her, but I was too busy writing notes and being excited about all I was learning.
There were tons of giveaways at the Summit and the vendor room was
packed with lots of goodies and product samples. I wondered if the freebies
would be the highlight of the summit, but they were certainly not. I think
I most enjoyed getting to know the faces behind kiwi and Moms Meet,
(including the other Mom Ambassadors)
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| The vendor room was a lot of fun |
But the speakers and workshops were a close 2nd to the new connections and networking that was done. We got to hear from professionals (including a pediatrician and psychiatrist) who believe in the holistic approach to raising children. This fits so well with our family's philosophy...those of you who have been around our blog for a while know that our son has had a lot of health issues that have required surgeries. The last 2 surgeries saved his life, and we are far from anti-modern medicine, but we choose to do things as naturally as possible unless it is absolutely imperative that we resort to the medical field. So can I just say that everything I learned about kiwi and Moms Meet made me that much more excited to be on board with them!? No green-guilt, no holier-than-thou attitudes, just a lot of moms who want to know better and do better for their families. SCORE! These are my peeps, y'all!
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| Dr Drew Ramsey (psychiatrist) discussing the importance of a plant-based diet for good mental health |
Allan and the kids managed to find some fun things to do after we all enjoyed a gluten-free lunch in Old-Town Philadelphia together.
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| Independence Hall-currently closed to the public thanks to the gov't shutdown, but still pretty cool to see and getting caught in the rain was a big bonus for the littles |
Of course they had to learn the history of the city...what kind of roadschoolers would we be if we just locked them up in the room to watch TV? (Okay, so there was plenty of that, too...it's all about flexibility, right?)
After our day of learning and sampling, there was a banquet for us with live music. I was very impressed with the server who went out of her way to be sure my food needs were met (gluten free eating out is sometimes a huge bummer, I had actually been glutened at lunch earlier and not excited at the prospect of hurtingx2) I was also impressed with the band and most of all, I was impressed with the group of amazingly fun women I get to be a part of!
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| Oh my yum! This was fab. |
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| The server went out of her way to get me a separate GF desssert. That's service! |
I was sad when it was all over, but so happy to come home and implement some changes here on the blog that will help us be more interactive and useful for you. (I'm still looking for a good web designer that isn't too expensive if y'all have any suggestions!) I am always open for suggestions from you, so feel free to leave me a note about what you'd like to see from me in the future. I have some ideas already about a cost comparison from our traditional living vs. on the road (thanks Heather!)
I'm also excited to get in on some sampling campaigns and reviews. Here's my plug...if you'd like to be a part of the Moms Meet community, (it's FREE and you get an excuse to share awesome products with your friends!) just click on THIS LINK and sign up. I'll get 100 "points" for referring you and you'll be a part of a really neat group of ladies.
So to put a nice little bow on it all and say the same thing for the 25th time, I am so glad to have had the opportunity to get to know this group and I am looking forward to being a part of next year's Summit.
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| Of course, coming home with loads of goodies is always great, too! ;) |
Labels:
2013,
green-guilt,
homeschool,
Moms Meet,
Philadelphia,
roadschool,
Sheraton,
WOW Summit
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